Education
1998 Ph.D., Social Welfare, University of Wisconsin-Madison Dissertation: Parental Caregivers of Adults with Mental Retardation: The Experience of Older Fathers and Mothers 1973 M.S.S., Bryn Mawr College Graduate School of Social Work and Social Research, Bryn Mawr, PA 1970 B.A., Bryn Mawr College, Bryn Mawr, PA
Publications
Articles in Refereed Journals Chung, K., Essex, E. L., & Samson, L. (2009). Does caregiver knowledge matter for hospice enrollment and beyond? Pilot study of minority hospice patients. American Journal of Hospice and Palliative Medicine, 26, 165-171. Chung, K., Essex, E. L., & Samson, L. (2008) Ethnic variation in timing of hospice referral: Does having no informal caregiver matter? Journal of Palliative Medicine, 11, 484-491. Essex, E.L., & Biegel, D. (2007). Older case management clients with younger family members in need of care: Interdependencies and well-being. Care Management Journals: Journal of Case Management, 8, 162-170. Essex, E. L., Petras, D., & Massat, C. M. (2006). Predictors of loneliness among court-involved and substance abusing mothers. Women & Criminal Justice, 17, 63-74. Essex, E. L., & Hong, J. (2005). Older caregiving parents: Division of household labor, marital satisfaction, and caregiver burden. Family Relations, 54, 448-460. Essex, E. L., & Massat, C. R. (2005). Preparing school social workers for their wider role: Policy as practice. School Social Work Journal, 28, 1-19. Essex, E. L., Newsome, W. S., & Moses, H. (2004). Caring for grandparent-headed families: Challenges and opportunities for school social workers. School Social Work Journal, 28, 1-19. Essex, E. L. (2002). Mothers and fathers of adults with mental retardation: Feelings of intergenerational closeness. Family Relations, 51, 156-165. Petras, D. D., Massat, C. R., & Essex, E. L. (2002). Overcoming hopelessness and social isolation: The ENGAGE model for working with neglecting families toward permanence. Child Welfare, 81, 225-248. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104, 545-563. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1997). Residential transitions of adults with mental retardation: Predictors of waiting list use and placement. American Journal on Mental Retardation, 101, 613-629. Campbell, J. A., & Essex, E. L. (1994). Factors affecting parents in their future planning for a son or daughter with developmental disabilities. Education and Training in Mental Retardation and Developmental Disabilities, 29, 222-228. Campbell, J. A., Essex, E. L. & Held, G. (1994). Issues in chemical dependency treatment and after-care for people with learning differences. Health and Social Work, 19, 63-70. Book Chapters Massat, C. R., Essex, E. L., Hare, I., & Harris Rome, S. (2009) The developing social, political, and economic context for school social work. In C. R. Massat, R. Constable, S. McDonald, & J. P. Flynn (Eds.), School Social Work: Practice, policy, and research (7th ed., pp. 114-139). Chicago: Lyceum. Essex, E. L., Petras, D. & Massat, C.M. (2006). Predictors of loneliness among court-involved and substance abusing mothers. In J. A. Swartz, P. O'Brien, & A. J. Lurigio (Eds.), Drugs, women, and justice: Roles of the criminal justice system for drug-affected women (pp. 63-74). Binghamton, NY: Haworth Press. (Also published in Women & Criminal Justice as listed above under "articles"). Hsieh, C., & Essex, E. (2006). Measuring client satisfaction among older adults and families. In B. Berkman (Ed.), The Oxford handbook of social work in health and aging (pp. 1009-1017). New York: Oxford University Press. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (2002). Fathers as caregivers for adult children with mental retardation. In B. J. Kramer & E. H. Thompson (Eds.), Men as caregivers: Theory, research, and service implications (pp. 250-268). New York: Springer. Seltzer, G. B., & Essex, E. L. (1998). Service needs of persons with mental retardation and other developmental disabilities. In S.M. Allen & V. Mor (Eds.), Living in the community with disability: Service needs, use, and systems (pp. 197-218). New York: Springer. Newsletter Articles Essex, E. L., Adam, N. M., Moukahal, W., & Tabahi, S. (2009, December). Exploring the needs of Arab American older adults. What's Hot, Issue 1: Minority Aging Research, p. 13. [Newsletter of the Gerontological Society of America]. (Published abstract from paper presentation at the GSA Annual Scientific Meeting in November 2009). Petras, D., Massat, C. M., & Essex, E. L. (2006). Service needs of substance abusing mothers involved with the criminal justice system. Women, Girls, and Criminal Justice, 7(5), 73-77. Essex, E. L., Seltzer, M. M., & Krauss, M.W. (1995). Launching patterns in families of adults with developmental disabilities. AddVantage, 7(1), 1. Newsletter of the Rehabilitation Research and Training Center on Aging with Mental Retardation, University of Illinois at Chicago. Manual Williams, R. T., & Essex. E. (1992). Directory of Wisconsin Farm and Rural Community Groups. Madison, WI: University of Wisconsin-Madison Extension.
Honors
2002 Hartford Geriatric Social Work Faculty Scholar 1998 Academy on Mental Retardation Dissertation Symposium Award 1973 B.A. Magna Cum Laude, Bryn Mawr College
Presentations
Essex, E. L., Adam, N. M., Moukahal, W., & Tabahi, S. (2011). Older Arab Americans and younger family caregivers: Intergenerational experiences and needs. Paper presented at the 15th Annual Conference of the Society for Social Work and Research, Tampa.
Essex, E. L., Adam, N. M., Moukahal, W., & Tabahi, S. (2009). Exploring the needs of Arab American older adults. Paper presented at the 62nd Annual Scientific Meeting of the Gerontological Society of America, Atlanta.
Chung, K., Essex, E. L., & Samson, L. F. (2009). Hospice residence: An understudied area of hospice research. Paper presented at the 62nd Annual Scientific Meeting of the Gerontological Society of America, Atlanta.
Essex, E., Adam, N., & Shalabi, I. (2009). Needs of Arab American older adults. Presented at Diversity and Aging in the 21st Century: The Power of Inclusion -- AARP’s second Diversity and Aging in the 21st Century Conference, Chicago.
Chung, K., & Essex, E. (2007). Ethnic variation in length of stay among hospice patients with advanced dementia. Presented at the 60th Annual Scientific Meeting of the Gerontological Society of America, San Francisco.
Greenberg, J., Essex, E., Seltzer, M. M., & Ghosh, S.* (2007). Fathers of children with special needs: The case of developmental disabilities and mental illness. Paper prepared for “Male Caregiving: Creating a Research, Programmatic and Policy Agenda for an Emerging Public Health Issue,” University of Maryland (Conference sponsored by University of Maryland and HSC Foundation). *Greenberg & Essex shared primary authorship.
Petras, D., Massat, C., & Essex, E. (2007). Health needs of families with mothers involved with substance abuse and criminal justice. Presented at the Eleventh Annual Conference of the Society for Social Work and Research, San Francisco.
Essex, E., & Chung, K. (2006). Older adults as caregivers: Contrasting experiences of caring for younger adults or minors. Poster presented at the 59th Annual Scientific Meeting of the Gerontological Society of America, Dallas.
Chung, K., & Essex, E. (2006). Examining racial difference in hospice days of care among patients who are still in care. Presented at the 59th Annual Scientific Meeting of the Gerontological Society of America, Dallas.
Chung, K., Essex, E., & Samson, L. (2006). Minority elderly receiving hospice care in institutional settings. Presented at the First Annual Conference on Minority Health Disparities Research, Institute for Health, Social, and Community Research, Shaw University, Raleigh, North Carolina.
Essex, E. (2005). Older case management clients and younger family members in need of care: Interdependencies and well-being. Poster presented at the 58th Annual Scientific Meeting of the Gerontological Society of America, Orlando.
Essex, E., & Petras, P. (2005). Loneliness among substance abusing and court-involved mothers. Presented at the symposium Drugs, Women, and Justice: A Research Perspective, University of Illinois at Chicago, Chicago.
Essex, E. (2004). Caregiving networks of older case management clients and younger family members with disabilities or chronic health problems. Presented at the Eighth Annual Conference of the Society for Social Work and Research, New Orleans.
Essex, E. (2003). Research study update: Older case management clients and younger family members in need of care. Presented at Institute for Hartford Social Work Faculty Scholars and Mentors, Washington, D.C.
Essex, E. (2002). Older case management clients and younger family members in need of care. Presented at Institute for Hartford Social Work Faculty Scholars and Mentors, Washington, D.C.
Essex, E. L., Seltzer, M. M., & Krauss, M. W. (2000). Fathers as caregivers for adult children with mental retardation. Presented at the 53rd Annual Scientific Meeting of the Gerontological Society of America, Washington, D.C.
Essex, E. L., Seltzer, M. M., & Krauss, M. W. (2000). Division of responsibility and well-being among older mothers and fathers of adults with mental retardation. Presented at the 53rd Annual Scientific Meeting of the Gerontological Society of America, Washington, D.C.
Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1999). The role of aging fathers in two-parent families of adults with mental retardation: Caregiving, well-being, and spousal support. Presented at the 123rd annual meeting of the American Association on Mental Retardation, New Orleans, LA.
Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1998). Aging parental caregivers of adults with mental retardation: Parental gender and intergenerational intimacy. Presented at the 51st Annual Scientific Meeting of the Gerontological Society of American, Philadelphia, PA.
Essex, E. L. (1998). Parental caregivers of adults with mental retardation: The experience of mothers and fathers. Presented at the 122nd Annual Conference of the American Association on Mental Retardation, San Diego, CA.
Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1997). Aging mothers and fathers of adults with mental retardation: Patterns of coping and adaptation. Presented at the 105th Convention of the American Psychological Association, Chicago, IL.
Essex, E., Seltzer, M. M., & Krauss, M. W. (1994). The end of caregiving: Transitions of older mothers of adults with mental retardation. Presented at the 47th Annual Scientific Meeting of the Gerontological Society of America, Atlanta, GA.
Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1993). Aging fathers as caregivers for adult children with developmental disabilities. Presented at the National Institute on Aging Symposium on "Men's Caregiving Roles in an Aging Society," Rockville, MD.
Essex, E. L., & Campbell, J. A. (1993). Developing chemical dependency treatment and after-care for people with learning differences. Presented at the Council on Social Work Education Annual Program Meeting, New York, NY. Essex, E. L., Adam, N. M. Moukahal, W., & Tabahi, S. (2011) Older Arab Americans and younger family caregivers: Intergenerational experiences and needs. Paper presented at the 15th Annual Conference of the Society for Social Work and Research, Tampa. Essex, E. L., Adam, N. M., Moukahal, W., & Tabahi, S. (2009). Exploring the needs of Arab American older adults. Paper presented at the 62nd Annual Scientific Meeting of the Gerontological Society of America, Atlanta. Chung, K., Essex, E. L., & Samson, L. F. (2009). Hospice residence: An understudied area of hospice research. Paper presented at the 62nd Annual Scientific Meeting of the Gerontological Society of America, Atlanta. Essex, E., Adam, N., & Shalabi, I. (2009). Needs of Arab American older adults. Presented at Diversity and Aging in the 21st Century: The Power of Inclusion — AARP’s second Diversity and Aging in the 21st Century Conference, Chicago. Chung, K., & Esex, E. (2007). Ethnic variation in length of stay among hospice patients with advanced dementia. Presented at the 60th Annual Scientific Meeting of the Gerontological Society of America, San Francisco. Greenberg, J., Essex, E., Seltzer, M. M., & Ghosh, S.* (2007). Fathers of children with special needs: The case of developmental disabilities and mental illness. Paper prepared for “Male Caregiving: Creating a Research, Programmatic and Policy Agenda for an Emerging Public Health Issue,” University of Maryland (Conference sponsored by University of Maryland and HSC Foundation). *Greenberg & Essex shared primary authorship. Petras, D., Massat, C., & Essex, E. (2007). Health needs of families with mothers involved with substance abuse and criminal justice. Presented at the Eleventh Annual Conference of the Society for Social and Research, San Francisco. Essex, E., & Chung, K. (2006). Older Adults as Caregivers: Contrasting experiences of caring for younger adults or minors. Presented at the 59th Annual Scientific Meeting of the Gerontological Society of America, Dallas. Chung, K., & Essex, E. (2006). Examining racial difference in hospice days of care among patients who are still in care. Presented at the 59th Annual Scientific Meeting of the Gerontological Society of America, Dallas. Essex, E. (2005). Older case management clients and younger family members in need of care: Interdependencies and well-being. Presented at the 58th Annual Scientific Meeting of the Gerontological Society of America, Orlando. Essex, E. (2004). Caregiving networks of older case management clients and younger family members with disabilities or chronic health problems. Presented at the Eighth Annual Conference of the Society for Social Work and Research, New Orleans. Essex, E. (2003). Research study update: Older case management clients and younger family members in need of care. Presented at Institute for Hartford Social Work Faculty Scholars and Mentors, Washington, D.C. Essex, E. (2002). Older case management clients and younger family members in need of care. Presented at Institute for Hartford Social Work Faculty Scholars and Mentors, Washington, D.C. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (2000). Fathers as caregivers for adult children with mental retardation. Presented at the 53rd Annual Scientific Meeting of the Gerontological Society of America, Washington, D.C. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (2000). Spousal division of responsibility and well-being of mothers caring for adult children with mental retardation. Presented at the 53rd Annual Scientific Meeting of the Gerontological Society of America, Washington, D.C. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1999). The role of aging fathers in two-parent families of adults with mental retardation: Caregiving, well-being, and spousal support. Presented at the 123rd annual meeting of the American Association of Mental Retardation, New Orleans, LA. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1998). Aging Parental caregivers of adults with mental retardation: Parental gender and intergenerational intimacy. Presented at the 51st Annual Scientific Meeting of the Gerontological Society of American, Philadelphia, PA Essex, E. L. (1998). Parental caregivers of adults with mental retardation: The experience of mothers and fathers. Presented at the 122nd Annual Conference of the American Association on Mental Retardation, San Diego, CA. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1997). Aging mothers and fathers of adults with mental retardation: Patterns of coping and adaptation. Presented at the 105th Convention of the American Psychological Association, Chicago, IL. Essex, E., Seltzer, M. M., & Krauss, M. W. (1994). The end of caregiving: Transitions of older mothers of adults with mental retardation. Presented at the 47th Annual Scientific Meeting of the Gerontological Society of America, Atlanta, GA. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1993). Aging fathers as caregivers for adult children with developmental disabilities. Presented at the National Institute on Aging Symposium on "Men's Caregiving Roles in an Aging Society," Rockville, MD. Essex, E. L., & Campbell, J. A. (1993). Developing chemical dependency treatment and after-care for people with learning differences. Presented at the Council on Social Work Education Annual Program Meeting, New York, NY. Seltzer, M. M., Leavitt, L., Essex, E., Hoyert, D. L., & Kost, K. S. (1993). Nonnormative parenting of children with retardation. Presented at the 1993 Winter Conference of the American Statistical Association, Fort Lauderdale, FL.
Research
External Evaluator. (2008 – 2013). SouthSTAR Services Career Tracks to Employment project, funded by the U. S. Department of Education Office of Special Education and Rehabilitative Services under the Projects with Industry Program. $18,000 a year. [Award to SouthSTAR Services is $1,072,302 in total].
Principal Investigator. (2008). Needs of Arab American Elders. Governors State University (GSU) Research Grant: $2710. GSU College of Health and Human Services matching funds: $630.
Consultant. (2007). Modeling of Need Determination Formula II. Project for the Illinois Health Facilities Planning Board, Illinois Department of Public Health. $5000.
Principal Investigator. (2007). College of Health and Human Services, Governors State University Mini-Grant. Funding to purchase ATLAS-ti software program to assist in analyzing qualitative data from research project, “Older Case Management Clients and Younger Family Members in Need of Care.” $535.
Consultant. (2007). Modeling of Need Determination Formula I. Project for the Illinois Health Facilities Planning Board, Illinois Department of Public Health. $5000.
Consultant. (2006). Health Facilities Inventory and Need Determination. Project for the Illinois Health Facilities Planning Board. $5000.
Principal Investigator. (2006). GSU Foundation Faculty Professional Development Grant for preparation and presentation of “Older Adults as Caregivers: Contrasting Experiences of Caring for Younger Adults or Minors” at the 59th Annual Scientific Meeting of the Gerontological Society of America in November, 2006. $1000.
Co-investigator. (2003-2008). Jane Addams Substance Abuse Research Collaboration. National Institute on Drug Abuse. Total grant: $1,924,526. Co-investigator for pilot study, “Substance Abusing, Court-involved Mothers: A Preliminary Study,” funded at $33,710.
Research Development Award. (2004). Granted award to develop proposal for federal funding building on pilot study of substance abusing, court-involved mothers. Jane Addams College of Social Work, University of Illinois at Chicago (UIC). $14,822.
Hartford Geriatric Social Work Faculty Scholar (2002-2004). Funded by John A. Hartford Foundation and administered by the Gerontological Society of America. Principal Investigator for research project, “Older Case Management Clients and Younger Family Members in Need of Care.” $100,000.
Co-Principal Investigator. (2000). Preliminary Study of Substance Abusing Mothers with Histories of Involvement with the Criminal Justice System. Jane Addams College of Social Work, UIC. $25,000.
Co-Principal Investigator. (1998). Processes involved in Informal Caregiving across Diverse Populations and Conditions. Jane Addams College of Social Work, UIC. $35,900.
Service
Governors State University: Service 2010 - Planning and Budget Advisory Council 2007 - Educational Policies Committee of Faculty Senate (Chair, 2008 to present) 2005 - Faculty Senate 2005 - 2010 College of Health and Human Services CUES Scholarship Committee (Co-Chair, 2006 to 2009) 2005 - Department of Social Work Admissions Committee 2005 - Department of Social Work Curriculum Committee 2005 - Department of Social Work Personnel Committee 2005 - 2008 Library Advisory Committee and Social Work Department Liaison 2007 - Department of Social Work Field Director Search Committee 2006 - 2007 Department of Social Work Faculty Search Committee (Chair) 2005 - 2006 College of Health and Human Services Academic Affairs Committee 2005 - 2006 Department of Social Work Faculty Search Committee (Secretary)
National, State, and Community Service 2010- Consulting Editor, School Social Work Journal 2007- Editorial Board, Journal of Community Practice
2007- Advisory Council, AgeOptions (Suburban Cook County Area Agency on Aging). Member 2007 – 2008; Secretary 2008 to present.
2000 - Institutional liaison, Influencing State Policy
2006 - 2009 Member, Workforce/Caregiver Work Group of the Illinois Older Adult Services Advisory Committee
2006 Member, National Development Team for: Council on Social Work Education (CSWE). National Statement on Research Integrity and Action Plan for Promoting Research Integrity in Social Work. Alexandria, VA: CSWE. 2006 Chair, Association of Community Organization and Social Administration Symposium at the Annual Program Meeting of CSWE, Chicago
2002 - 2005 Consultation to the University of Illinois at Chicago Central West Case Management Unit, concerning caregiving issues
2001 - 2002 Advisory Board Member, CERAP (Child Endangerment Risk Assessment Protocol) Project Advisory Committee for the Illinois Department of Children and Family Services
2000 - 2001 Advisory Board Member, Center for the Study of Assisted Living, Section of Geriatric Medicine, University of Illinois at Chicago
Professional Memberships
2002 - Society for Social Work and Research 2001 - Association for Community Organization and Social Work 2000 - Gerontological Society of America 2000 - Association for Gerontology Education in Social Work 2000 - Influencing State Policy (Institutional Liaison) 1998 - Academy on Mental Retardation 1998 - Council on Social Work Education 1993 - National Association of Social Workers 1991 - American Association on Mental Retardation
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